A Cup of Tea With Me

I went to my rheumatologist today.  It seems that my AntiCardiolopin Antibodies are at 11 this week. Since that is only one point over positive, I am not considered to have Antiphospholipid Syndrome. Or at least not by him. He put me on blood pressure meds, to try to control the constricting of the capillaries in my fingers and toes. That is due to the Raynaud’s Phenomenon, which is being treated as primary at this point. There are those out there that say positive is positive and that I should get a new doctor. All I can say is that the only other choice for a rheumy, I have locally, I do not want. I will stick with my current doctor.

I know there is more and I know that when God is ready for me to know what all is going on with my body, I will know it. I just have to be patient and not give up.

I have given this all to the Lord, and I know He will take care of it. I just wanted to give you all an update as to what was going on.  God is good and His will is perfect.

I have no peace about my health. I realize that is because I still worry about it, but I cannot help but feel that there is more to this than just my APS. I know I should not worry, but I do it anyway, which only makes me worry more, when that realization hits. Silly Melly…

Anyway, my ears have been ringing since, July 07, 2007. Nonstop. Nothing I do stops it. I cannot even mask it with other noises. It is ALWAYS there.

On top of that, my hearing in my right ear is coming and going. If there is any background noise, at all, you need to be right in front of me, like at least three feet, and I have to be able to see you. I do not know the connection between sight and hearing, but really. I can hear you better if I can see  you. I hate wearing my glasses at work, but I almost have to so that I can hear everybody, because there is a LOT of background noise, in the mall.

Between the ringing and the hearing, I am loosing my mind.

I asked my Dr about it. At first she said it was the asprin. Well, the ringing started before I started taking the asprin, so it cannot be that. She took me completely off caffeine, she said for “a few days”. I stayed off for almost a week. No change. I am now limiting myself to one caffeinated drink a day.

Anyway, no answer. I guess I will have to go to an ENT for it, but I do not really want to go to another Dr right now, but I will if I have to.

I am very moody and irritable with the ringing in my ears, so I have been silent.

I wanted to start sharing my health journey with you. One of the best places to start is the reasons why it is so hard for me to go to a Dr, even when I know I need to. I have a very hard time trusting in this area. The next time I hear the words, “I have no earthy idea what is wrong with you.” I am going to break down and cry, right there in the Dr’s office. I will not name Drs, clinics or even cities these Drs are from. No matter how privately you ask me, I will not reveal their names.

When I was 3, yes you read that right 3, years old, I had my tonsils removed.  It was 1973, in a very small town. They did do things like that back then. I was only 3. I do not remember the reasons for it or how sick I was before. I do know that since the age of 12, or for as long as I can remember, I have gotten strep throat at least once a year, with many years getting it as many as 4 times a year.

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